Lewy Body Dementia: Resource List

Lewy body dementia is the second most common type of dementia, with an estimated 1.4 million Americans diagnosed. In honor of Lewy Body Dementia Awareness Month, we've put together a few resources, both at Insight and in the wider community that may benefit your family.

What is Lewy Body Dementia?

Lewy body dementia (LBD) is an umbrella term for two related diagnoses: dementia with Lewy bodies (DLB) and Parkinson’s disease dementia (PDD). These progressive and degenerative diseases are associated with abnormal deposits of a protein in the brain. These deposits, called Lewy bodies, affect chemicals in the brain whose changes can lead to problems with thinking, movement, sleep, behavior, and mood.

What programs does Insight offer?

While families living with Lewy Body Dementia can benefit from many of Insight’s programs, here are a few options that might be beneficial:

Lewy Body Dementia Caregiver Support Group
Do you have a friend or family member with Lewy Body dementia? Join us for Lewy Body Dementia Caregiver Support Group to learn more about this specific type of dementia, and share with others who also have loved ones with the disease. This group is open to the public and free of charge.

SHARE Program
For those with a recent diagnosis, the SHARE program – an evidence-based program developed by dementia experts - provides families with a straightforward and viable way to plan for future needs.

Care & Respite Programs
No matter what stage of the journey your loved one is in, Insight offers programs for the diagnosed individual, both in-person and virtually.

• Reconnections, early stage engagement program
• Adult Day Health Center, early-mid to late stage holistic care

Consultations
Not sure where to start? Insight offers free family consultations to help guide your family along your journey, regardless of whether you utilize any of our other services. Give us a call!

Additional Resources

Lewy Body Dementia Association
lbda.org
Lewy Line: 800-539-9767
Through outreach, education and research, LBDA supports those affected by Lewy body dementias, their families and caregivers.

Inova Parkinson’s and Movement Disorders Center
inova.org/move
703-375-9987
Providing comprehensive care from a multidisciplinary team designed to get you moving again.

National Institute on Aging
https://www.nia.nih.gov/health/what-lewy-body-dementia
Under the National Institutes of Health, NIA conducts research and provides education on Alzheimer’s and other memory impairments.